Health and Work - Privacy Notice

In line with the new EU General Data Protection Regulation (GDPR), in this privacy notice for research participants, we explain the legal basis for data processing Health and Work research project. This includes who will have access to your personal data, how your data will be used, stored and deleted and who you can contact with a query or a complaint.

What is the legal basis for processing my data?

The Centre for Ageing Better is the data controller for this project. This means that they are responsible for deciding the purpose and legal basis for processing data. For this project, the legal basis for processing data is Article 6(1)(f) of the General Data Protection Regulation where “processing is necessary for the purposes of the legitimate interests pursued by the controller or by a third party, except where such interests are overridden by the interests or fundamental rights and freedoms of the data subject which require protection of personal data, in particular where the data subject is a child”.

The Privacy policy for the Centre for Ageing Better is available at https://www.ageing-better.org.uk/privacy-policy, which outlines how your data might be used. You can contact Amy McSweeney, the Project Manager at the Centre for Ageing Better with any questions about the research at: amy.mcsweeney@ageing-better.org.uk.

Who will have access to my personal data?

The Institute for Employment Studies (IES) has been commissioned by the Centre for Ageing Better to explore the impact of Covid-19 on people’s health and work. For the purpose of this project, IES are undertaking a series of interviews and online journals with individuals aged over 50 who are living with a long-term health condition or disability. With your consent, your personal details will be passed from the charity you are affiliated with or from our recruitment partner, Roots Recruitment, to a limited number of staff within IES in order to arrange and conduct the interviews.

During the interviews and for the journaling exercise you will be asked to provide information about your health and employment before Covid-19, the impact of the lockdown on your health and employment, and your views about what the future might hold. The research team at IES will have access to this data for analysis and presentation of findings. IES will use the interview and written journal data to produce an anonymous research report for Ageing Better presenting the findings of the research, not at an individual level.  Ageing Better will use the research findings to create a short anonymous film depicting the overall story emerging from the research (please see the research briefing for more details).You will be asked for your explicit consent to:

• take part in the first interview
• be contacted by IES to organise the second interview
• take part in the second interview
• and for follow up contact from IES for the written journaling exercise.

As an output of this research, Ageing Better are producing some additional video communications to help raise awareness about the impact of Covid-19. These are a video journal and a video case study. The video elements are voluntary, and you do not have to consent to participate.  The videos will be shared publicly across multiple platforms. Taking part in the video outputs is voluntary and you do not have to take part to participate in the interviews and journaling. If you express interest in taking part, you will be asked to give explicit consent for:

• your contact details to be shared with the Centre for Ageing Better to arrange filming.

The table below provides an overview of how your personal information will be used:

How will my data be treated?

The data you provide in your interview will be used for research purposes only. IES will produce a report that summarises the main findings from all the interviews. Individuals will not be named, nor will any information be included that could reveal their identity.

Your personal information will be securely deleted from the IES systems six months after the project is complete and the final report has been published (the project is currently estimated to end in March 2021).

Who can I contact if I would like to withdraw my interview data?

You have the right to withdraw the information you have provided as part of the interviews within four weeks of your interview date. If you have taken part in an interview but would like your data withdrawn, please contact: megan.edwards@employment-studies.co.uk

Who can I contact with a query about how my data will be used?

If you have any questions about how your data will be used, please contact Suzanne Anderson (Suzanne.Anderson@employment-studies.co.uk) ,data protection adviser or email Amy McSweeney amy.mcsweeney@ageing-better.org.uk with the subject “For the attention of the Data Protection Officer”.

Who can I contact with a complaint?

Under GDPR, you have the right to lodge a complaint with the Information Commissioner’s Office at www.ico.org.uk